70万一针救命药首入医保，患儿家长喜极而泣：宝宝有救了
<div class="wx_rich_media_content" id="jsWxContainer"><section style='line-height: 1.75em;text-align: center;' data-mpa-powered-by="yiban.io"><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“我们的宝宝有救了”<br style='outline: 0px; max-width: 100%; box-sizing: border-box !important;'></span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“我们盼了多少年</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>终于盼到了”</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>12月3日</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>国家医保局发布消息</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>全球首个用于治疗罕见病</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>脊髓性肌萎缩症（SMA）的药物</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>诺西那生钠注射液被正式纳入医保</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>消息一出</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>不少患儿家长喜极而泣</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'><br></span></section><section style='text-align: center;'>https://v.qq.com/x/page/x3312nrlf13.html</section><section style='line-height: 1.75em;text-align: center;'><br><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'></span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>每瓶从53680元砍到33000元</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>这意味着什么？</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“天价救命药”往后一年的费用</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>可能直接降到原先的三分之一</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>甚至更低</span></section><section style='line-height: 1.75em;text-align: center;'><br style='outline: 0px; max-width: 100%; box-sizing: border-box !important;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>有SMA患儿家长表示</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>33000元除去医保报销部分</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>最终自费价格还要低</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>一年或只需要10万元左右</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section data-mpa-template="t" mpa-from-tpl="t" mpa-paragraph-type="title"><section data-tools="135编辑器" data-id="87707" data-color="#053fb5" mpa-from-tpl="t"><section><section mpa-from-tpl="t"><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>SMA的治疗就是与时间赛跑！</span></section></section></section></section></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>SMA是一种危及全身多器官</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>可致残致死的罕见神经系统疾病</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>SMA在存活新生儿中的发病率</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>仅1／10000</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>却是导致婴儿死亡</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>最常见的遗传疾病之一</span></section><section style='line-height: 1.75em;text-align: center;'><br style='outline: 0px; max-width: 100%; box-sizing: border-box !important;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>I型SMA患儿</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>如不进行有效药物治疗</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>80%以上将在一岁内死亡</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>很少能存活超过两岁</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>SMA的治疗就是与时间赛跑</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>2019年2月</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>诺西那生钠注射液获得国家药监局批准</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>成为中国首个治疗SMA的药物</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>在此之前</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>国内的SMA患者一直无药可医</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section data-mpa-template="t" mpa-from-tpl="t" mpa-paragraph-type="title"><section data-tools="135编辑器" data-id="87707" data-color="#053fb5" mpa-from-tpl="t"><section><section mpa-from-tpl="t"><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“我眼泪都快掉下来了！”</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'> 医保谈判“灵魂砍价”上热搜</span></section></section></section></section></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“我们的目标是一致的</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>都不希望（有）套路”</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>在今年的谈判中</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>治疗罕见病</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>脊髓性肌萎缩症的药物谈判</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>进行了一个半小时</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>过程可谓“异常艰难”</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>企业第一轮报价中</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>给出的价格是53680每瓶</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>国家医保局谈判代表张劲妮回答</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“希望企业拿出更有诚意的报价</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>每一个小群体都不该被放弃”</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>在随后的谈判中</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>医保代表上演“灵魂砍价”</span></section><blockquote data-type="2" data-url="" data-author-name="" data-content-utf8-length="75" data-source-title=""><section><section><section style='line-height: 1.75em;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“相信企业感到很痛，但离我们能进一步谈，还有一定的距离。”</span></section><section style='line-height: 1.75em;'><br></section><section style='line-height: 1.75em;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“谈判桌上我们作为甲方，这么卑微，真的很难。”</span></section><section style='line-height: 1.75em;'><br></section><section style='line-height: 1.75em;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>“真的很艰难，我觉得我刚眼泪都快掉下来了。”</span></section></section></section></blockquote><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>视频记录谈判全过程</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>↓↓↓</span></section><section style='line-height: 1.75em;text-align: center;'>https://v.qq.com/x/page/q33124ilz9b.html</section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>历经一个半小时的漫长谈判</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>企业代表八次离席商谈</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>每瓶药的成交价</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>比最初的报价少了2万多元 </span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>随着“成交”二字</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>这场谈判终于落下帷幕</span></section><section style='line-height: 1.75em;text-align: center;'><span style='font-size: 15px;color: rgb(76, 76, 76);letter-spacing: 1px;'>这场“灵魂砍价”连上了三个热搜</span></section><section style='line-height: 1.75em;text-align: center;'><br></section><section style='line-height: 1.75em;text-align: center;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 677px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; line-height: 1.75em; text-align: center; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 677px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; line-height: 1.75em; text-align: center; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 578px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; line-height: 1.75em; text-align: center; box-sizing: border-box !important;'><br></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; text-align: center; line-height: 1.75em; box-sizing: border-box !important;'><span style='outline: 0px; max-width: 100%; font-size: 15px; color: rgb(76, 76, 76); letter-spacing: 1px; box-sizing: border-box !important;'>也引起了网友的热议</span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; text-align: center; line-height: 1.75em; box-sizing: border-box !important;'><span style='outline: 0px; max-width: 100%; font-size: 15px; color: rgb(76, 76, 76); letter-spacing: 1px; box-sizing: border-box !important;'>↓↓↓</span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; text-align: center; line-height: 1.75em; box-sizing: border-box !important;'><span style='outline: 0px; max-width: 100%; font-size: 15px; color: rgb(76, 76, 76); letter-spacing: 1px; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 676.992px !important;'></span></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; text-align: center; line-height: 1.75em; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 676.992px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; text-align: center; line-height: 1.75em; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 676.992px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; text-align: center; line-height: 1.75em; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 676.992px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; line-height: 1.75em; text-align: center; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;letter-spacing: 0.544px;box-shadow: rgb(170, 170, 170) 0px 0px 14px 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 548px !important;'></span></section><section style='outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; line-height: 1.75em; text-align: center; box-sizing: border-box !important;'><span class="wxart_image" wx-style='display:inline-block;outline: 0px;box-sizing: border-box !important;overflow-wrap: break-word !important;visibility: visible !important;width: 548px !important;'></span></section><section><br></section><section><span style='color: rgb(136, 136, 136);'><strong><span style='font-size: 13px;'>来源：人民日报综合中央政法委长安剑、央视新闻、大象新闻</span></strong></span></section><section style='text-align: center; outline: 0px; max-width: 100%; font-family: -apple-system, BlinkMacSystemFont, "Helvetica Neue", "PingFang SC", "Hiragino Sans GB", "Microsoft YaHei UI", "Microsoft YaHei", Arial, sans-serif; letter-spacing: 0.544px; line-height: 1.75em; box-sizing: border-box !important;'><img src="http://www.yewn.cn/data/attachment/forum/202112/03/090809sla0jmzl4ulazjy6.jpg"></section></div> 辛苦了为了农民医药利润大的不可思议
其实真的是责任心与良心的拷问，国家政策惠泽普通百姓，也包括特殊的群体！
老百姓看病太难了。
老百姓看病太难了。
药品利润太大，还是希望国家能多监管药品价
医药利润大的不可思议
早该这样了
也算好消息！！！！